Tuesday 20 September 2011

Tuesday 20th September 2011. AM

Freddie is currently at the Leicester Royal Infirmary hospital (will explain how/why he got there in future post). Me, Samuel and Freddie's Mamma visited him yesterday afternoon (his Daddy has had to go back to work) and  it was lovely to see him off his ventilator for the first time in nearly a week. He looks really well, bigger and more awake than we have seen him for a while. His hair is so much lighter than it was when he was born and is really growing now.
Yesterday I was told over the phone that Freddie would be moving back to Glenfield hospital to wait on their children's ward until he has his heart surgery. However, during our visit yesterday it became apparent that there is some confusion over where Freddie is going and when his surgery is going to be. We have been under the impression that it would be at the end of this week all being well but the consultant I spoke to yesterday mentioned him being taken to a neonatal unit at either Leicester Royal or Leicester general till he is bigger and stronger for his operation. This was a bit like a slap in the face because the surgeon and other doctors we have spoken to have always given the impression that we don't need to wait a significant period of time before he can have his surgery. I hate the thought of him having to stay at Leicester for a long time before he can have his op because I don't get to see him very much.

Just waiting till the doctors have finished their rounds then I am going to ring and find out if they know what is happening.

Aimee

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