Hi everyone,
Freddie is recovering well from his surgery. His blood tests have been good all day and he is not on a lot of medication compared to what he was when he first came out of theatre!
They were so happy with how he was doing that the doctor agreed to see how he went breathing on his own. They switched his ventilator off but he wasn't quite ready so he has still got the breathing tube in. After a recent phone call we have learned that he is now on something called 'cpap' through his tube rather than full ventilation and is coping very well which is a very positive step towards them taking his ventilation tube out.
We were in Leicester for quite a while today but didn't actually get to spend a significant amount of time at Freddie's side. Either the doctors doing their rounds, nurses carrying out tests etc on Freddie or us entertaining Samuel by taking him to the park prevented us from spending much time with him. To be honest it is very difficult to spend time with him when he is in the intensive care unit as he is receiving constant attention from the professionals and lack of sleep and stress mean that the time Jon and I can cope with the bleeping machines and poorly children has significantly diminished recently! He is receiving fantastic care which we are so grateful for but as parents it is difficult to walk away from him.
It has all been good news today and we feel like we can breathe easy for the time being.
With Freddie's fighting spirit we wouldn't be surprised if he was off his ventilator by tomorrow.
xxx
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