We've had a full day at Glenfield today, spending time with Freddie and also entertaining his older bro!
Freddie continuing to do well. He had lost a very small amount of weight when they weighed him this morning. They are keeping his fluids up as well as increasing his feeds because they do not want him to lose a lot of weight, especially before his surgery.
We got to have lots of cuddles today and things were going very well until one of his cannula's (line going into his hand) stopped working again! Overnight the doctors had to put another cannula in because one had stopped working so this morning he had one in his hand and one in his foot. The poor little mite has been poked with these things so much that they tried and tried but couldn't find a vein this afternoon. The nurse came and told us that they would have to put one in his scalp which would mean shaving a patch of hair off. Obviously rather distraught at the thought of him having to have this done as it must be very uncomfortable and painful. We didn't watch while they did it - don't think I'd be able to without passing out/breaking down in tears!
He needs to have these lines going in to have his medicine and to have the fluids he needs.
Freddie not looking his best after he had his new line put in. He had a good sleep after they did it though and seemed nice and comfortable.
Apparently he has to have this strange looking hat on (a plastic beaker stuck on!) until the line can come out which makes cuddling him a little bit more awkward!
It's not all bad though, because other than the unfortunate cannula experience he is doing really well. He is really stable and all of the regular tests that the doctors carry out are showing good results. He is still taking some of his feeds in a bottle and some through his tube because he is fed every hour so it is tiring for him.
Looking forward to lots of cuddles with him tomorrow. Will remind him of all the drama he caused us in these early days until he is at least 40 years old!
xx
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